Partner

Ephion Health Ephion Health (EPH) is a Barcelona-based startup providing a hardware-agnostic AI platform that unifies multimodal wearable data into objective, validated digital biomarkers. Ephion’s mission is to  ensure accurate disease monitoring and therapy assessment, helping clinicians and patients during the entire therapeutic journey, from diagnosis through follow up and all the way to personalized [...]

Institut de Recerca Sant Pau Hospital de la Santa Creu i Sant Pau is a recognised European reference centre for neuromuscular diseases and part of several international trial networks. The site has delivered multiple complex clinical studies, both observational and interventional, including those using gait analysis and digital health technologies. Its patient registry and strong [...]

Leiden University Medical Center LUMC is a centre for medical innovation, committed to the advancement of health care and education in line with the latest international insights and standards, and aims to play a nationally and internationally recognized leading role in improving medicine and the quality of health care. LUMC offers state-of-the-art research facilities to [...]

FSHD Society The FSHD Society is the world’s largest research and patient advocacy organization dedicated to facioscapulohumeral muscular dystrophy (FSHD). Since its founding in 1991, the Society has led the charge in advancing research, patient advocacy, and support for those living with FSHD.) Follow Follow Visit

Parent Project aps Parent Project (PP) aps - association of social promotion - is an association of patients and parents with children affected by Duchenne and Becker muscular dystrophy. Since 1996, PP has been working to improve the treatment, quality of life and long-term prospects of patients through research, education, training and awareness. PP’s main [...]

Friedrich-Baur-Institute (FBI Munich) The Friedrich-Baur-Institute (FBI Munich) at the Department of Neurology LMU Clinic is an outstanding specialized institution for neuromuscular diseases. Besides routine care for in- and outpatients with neuromuscular diseases, the Friedrich-Baur-Institute runs several basic research projects, clinical trials phase I-IV and also established and hosts several patient registries for various neuromuscular diseases [...]