Engagement - Project PaLaDIn

Help us to design the Interactium!

PaLaDIn is committed to enhancing healthcare outcomes for individuals with neuromuscular and other rare diseases through the development of ‘The Interactium,’ a global, patient-centric data platform. We want to make sure that the Interactium meets the needs of its users including patients and researchers. To do this, we need your help. Please complete the relevant short survey below to help inform the development of the PaLaDIn Interactium. If you have any questions, please contact paladin.comms@newcastle.ac.uk.

Take Survey

Patient Survey

If you are a patient with a neuromuscular or other rare disease please complete this survey about your data preferences.

Take Survey

Researchers Survey

If you are a researcher working on neuromuscular or other rare diseases please complete this survey about your data preferences.

Compila il questionario

Questionario per pazienti

(Italian Patient Survey)

Se sei un paziente o un caregiver di un paziente affetto da una patologia neuromuscolare o da un’altra patologia rara, vi invitiamo a completare questo sondaggio sulle vostre preferenze in materia di dati.

Vul de enquête in

Enquête gegevensvoorkeuren van patiënten

(Dutch Patient Survey)

Als u een patiënt bent met een neuromusculaire of andere zeldzame ziekte, vul dan deze enquête in en deel uw mening over uw gezondheidszorggegevens.

Nehmen Sie an einer Umfrage teil

Datenpräferenzen Umfrage

(German Patient Survey)

Wenn Sie ein Patient mit einer seltenen neuromuskulären Erkrankung sind, füllen Sie bitte den Fragebogen über Ihre bevorzugten Informationen aus.