Within PaLaDIn, partners will work together to identify ways to maximise the benefits of the PaLaDIn Interactium® data platform, using FSHD as a case study. To support this work, PaLaDIn Scientific Coordinator TREAT-NMD seeks a provider (or consortium of providers) to provide skills and expertise, with a specific focus on generating a Health Technology Assessment (HTA) disease-model, developing a model patient journey of FSHD, and evaluating the effectiveness of patient support programs already in place.
The successful provider will bring experience in HTA evidence generation in the rare, genetic, neuromuscular diseases space, with a particular emphasis on FSHD. Ideally, the provider will have experience of working alongside patient advocacy and other organisations in the European FSHD community. To read the full tender and to find out more information about applying, click here.
