What’s in this edition:
– Survey-Engaging with the RD community
– Introduction to PalaGait
– PROMs Workshop
– The latest on the Interactium®
– Meet the Team: IRSP
– Collaboration with FSHD Europe
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What’s in this edition:
– Interactium® update
– PaLaDIn presents at ECRD 2026
– Project Mercury – Interim Progress Report
– Patient and Caregiver User Group (PCUG) progress update
– Meet the Team: FBI Munich
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What’s in this edition:
– Promptly Health collaborate to build the Interactium®
– TREAT-NMD Conference
– PaLaDIn and Rare Disease Day 2026
– Parent Project Italy Conference
– FSHD Europe collaborate in PaLaDIn
– PaLaDIn at ECRD 2026
– Meet the Team: Ephion Health
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What’s in this edition:
– End of year message from the PMT
– Interactium development partner
– Patient and Caregiver User Group
– Update on DM1 & FSHD datasets
– Meet the team LUMC!
– DMD quality of life questionnaires
– FSHD engagement day
– FAQ highlight
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What’s in this edition:
– Join Patient & Caregiver User Group
– PaLaDIn position paper
– BMD education and engagement day
– World Duchenne Awareness Day
– Meet the team AUMC!
– FAQ highlight
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What’s in this edition:
– Update on the Interactium®
– Patient & caregiver user group
– General assembly highlights
– Meet the teams!
– FAQ highlight
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What’s in this edition:
– What is PaLaDIn?
– Appointment of Clinical Leads
– Meet the Teams!
– What is the PaLaDIn Interactium®?
– Help us to design the Interactium®!
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