The Friedrich-Baur-Institute (FBI Munich) at the Department of Neurology LMU Clinic is an outstanding specialized institution for neuromuscular diseases. Besides routine care for in- and outpatients with neuromuscular diseases, the Friedrich-Baur-Institute runs several basic research projects, clinical trials phase I-IV and also established and hosts several patient registries for various neuromuscular diseases in Germany and worldwide.  

Ludwig-Maximilian-University of Munich, Germany, is leading the Work Package WP 8 D-CORE, a project that is creating and publishing a harmonized consensus data set for the neuromuscular diseases FSHD and DM1 as well as develop a framework to govern future dataset updates.