Meet the Team

IRSP specialises in conducting translational research that connects basic science with clinical practice in order to accelerate the arrival of scientific advances to patients.

The Friedrich-Baur-Institut (FBI Munich), part of the Department of Neurology at LMU Klinikum, is an outstanding specialist institution for neuromuscular diseases.

Ephion Health are a diverse team united by a mission to develop digital tools that help clinicians and patients throughout the entire therapeutic journey.

LUMC is a university medical center located in the Netherlands. LUMC plays an active and innovative role in healthcare at the regional, national, and international level.

Amsterdam UMC combines high-quality patient care, innovative scientific research, and education of the next generation of health care professionals.

John Walton Muscular Dystrophy Research Centre (JWMDRC) team

The John Walton Muscular Dystrophy Research Centre (JWMDRC) is a world leading centre for Neuromuscular diseases.

Duchenne UK is a medical research charity founded by Emily Reuben OBE and Alex Johnson OBE following their sons being diagnosed with DMD.

The FSHD Society is the world’s largest research and patient advocacy organization for facioscapulohumeral muscular dystrophy (FSHD).

TREAT-NMD is a global network of experts in the neuromuscular field with a mission to accelerate effective treatments, diagnosis and care.

Parent Project APS (PPI), is an association of patients and parents with children affected by Duchenne and Becker muscular dystrophy.