Parent Project (PP) aps – association of social promotion – is an association of patients and parents with children affected by Duchenne and Becker muscular dystrophy. Since 1996, PP has been working to improve the treatment, quality of life and long-term prospects of patients through research, education, training and awareness. PP’s main goals are to support the families; to promote and fund scientific research; to develop a cooperative network. Over time, the association has grown and has equipped itself with an organizational structure and a staff. Parents and, nowadays, patients also play a central role at the decision-making level.  

PP leads the Italian DMD/BMD Patient Registry.

Parent Project aps is the coordinator of the Paladin Project. It is the lead of WP1 “Project Management.” This WP includes management of the project, its milestones, deliverables, finances, contractors and all partners.  Parent Project also leads WP2 “Patient Involvement & Engagement”. The goal of Wp2 is to engage patients to test the platform, produce educational materials, and Improve and grow the collection of PROMs and PREMs in the neuromuscular field.  

The association is also involved in WP3 “Communication, Dissemination, Exploitation and Scale Up” and WP10.